Holy Bone My Ass

I never took an anatomy class, so perhaps that’s why I don’t recall ever having heard the word “sacrum” before getting the results of my PET scan two days ago. The sacrum is the triangular bone in the middle of the pelvis at the base of the spine, and it’s known as the holy bone. Many ancient cultures considered it sacred (hence the name sacrum) because it protected the reproductive organs and could resist decomposition longer than any other bone, thereby making it the source of resurrection in the afterlife. Therefore, I find it ironic that this is one of the parts of my body that is currently being invaded by cancerous cells. It seems blasphemous. But it also seems appropriate given my luck.

Back in late August/early September I noticed that my left armpit felt a little swollen and there was a dull pain. I assumed the swelling was lymphedema related to having had a lymph node removed when I was first diagnosed with breast cancer back in October 2015. Plus, I’d had a constant dull pain in that arm ever since I shattered my left elbow in 2018 and had had two surgeries on it. However, when you have pain and swelling right next to where you used to have a tumor, you get it checked out. So I did. The nurse practitioner at my oncologist’s office didn’t seem concerned by it, but she said that if I wanted to get an ultrasound for peace of mind, I could. Initially I said yes to scheduling it, but I decided against it because my bloodwork came back just fine, so I figured if my blood looked good and the nurse practitioner didn’t seem concerned, I wasn’t going to spend the money on an ultrasound.

In December I was still having some mild pain and discomfort on the left side, from my armpit to my elbow, and again I thought it was probably just a combination of lymphedema and radiating elbow pain, but I figured I should get it checked out, so I went back to the oncologist’s office and I saw the nurse practitioner, and again she didn’t feel anything that concerned her, but she said that if I wanted an ultrasound for peace of mind, I could schedule it, so I did. I had the ultrasound, and a weird lymph node (nothing too troubling looking, but just not totally normal) came up, so we scheduled a biopsy for the next day. I was scared and convinced that my cancer was back, but the biopsy didn’t show any cancer. It was checked for breast cancer and lymphoma, but all it showed was a reactive lymph node (just a node doing its little node thang and filtering out something that didn’t look right, as lymph nodes are supposed to do).

The mild swelling and discomfort continued, but again I thought: lymphedema and radiating elbow pain. In March I had my last 6-month check-in with my oncologist. March 2021 marked 5 years since my last chemo treatment, so I was considered in full remission. I cried in the doctor’s office because I was talking about a young woman who had recently experienced a recurrence of her breast cancer after having initially received a low stage diagnosis. I was reassured that I shouldn’t worry, that her cancer and mine were different. I had had the Johnson and Johnson Covid vaccine the week before, so when I pointed out my swollen lymph nodes (which were on the left side of my neck, even though I’d had the shot on my right side), I wasn’t too worried. My oncologist told me that if my lymph nodes were still swollen a week later that I should contact my primary care doctor.

I forgot about the lymph nodes. I couldn’t see them. They didn’t hurt. I continued to live with what I thought was mild lymphedema and radiating elbow pain. I had seen a lymphedema specialist after the September visit with the nurse practitioner, but I didn’t think it would do me any good to continue going. I paid a specialist $50 to measure my arm and rub it a little, so I was just, like, nah. I’ll save my money for cocktails.

A few weeks ago I started to have a mild, dry cough. It was sporadic. I felt a bit more winded than usual when I would walk up stairs, and sometimes I had a light wheeze. But then, for whatever reason, I touched the spot where those swollen lymph nodes had been back in March. They didn’t hurt, but they were hard. So I called my primary care doctor, and I saw her on Friday, June 4. She gave me a number to schedule an ultrasound, and I had the ultrasound on Wed, June 9. I was a little suspicious when the ultrasound tech said, “So, when was your last chemo treatment?” And I’m thinking, “Why do you want to know?” and then she said, “There’s actually a third spot (I could feel two hard spots that I directed her to), but that’s pretty common,” and I thought, “Common for what?”

I left the ultrasound appointment and went to a restaurant to pick up food for a mutual friend who had recently been diagnosed with Stage 4 colon cancer. I dropped off the food at her house, and as I was driving home I got a call from my primary care doc; she asked if it was an OK time to talk. “Oh shit,” I thought. The ultrasound showed some problematic areas, so she called my oncologist who arranged for a CT scan the next day. I went over to my parents’ after I spoke to my primary care doctor and told them what was going on, and my sisters and boyfriend came over and we all sat in the living room and cried and laughed (in between calls with my insurance company about getting pre-approval for the scan).

The next day I had my CT scan in the morning, and late in the afternoon I got the results (using the hospital app). There were many suspicious lymph nodes and there were small nodules in the lungs. One of the nurses at my oncologist’s office soon called and said my doctor could meet with me on Monday (this was Thursday early evening). I said, “Please tell me something now,” and she said, “It doesn’t look good.” The next day I called the oncologist’s office and left a message asking for someone to please call and talk to me, so one of the (wait for it) on-call-ogists called me, but there was really nothing he could tell me that I didn’t already know just by reading the results of the CT scan. Later that afternoon my oncologist called me. She had been on the road, but she just wanted to touch base about the CT results. There really wasn’t anything substantial she could tell me.

On Monday morning my parents and I went to see my oncologist, and again she couldn’t really tell us anything substantial . She said there was a 10% chance it was an infection (I knew it wasn’t). She said we needed a PET scan and a biopsy to determine the next steps, so she told me to schedule a PET scan on my way out of the office. When I went to schedule one with the check-out lady, there was no order in the system, so she gave me the number to call. I immediately went out to the lobby and called, but there was no order from the doctor in the system, so the PET scan couldn’t be scheduled. I was angry. I went back into the oncologist’s office and waited for the two receptionists to stop talking. I stood there with my hand on my hip. Finally, one of the women looked at me, and I asked to speak to my doctor. It was obvious I was mad. She told me that she would call for the nurse. I stood next to a middle-aged woman and said angrily to hear, “They should have been scanning me but they didn’t and now it’s in my fucking lungs!” ::I got some looks::

The receptionist called me over and handed me the phone. Frustrated, I asked the nurse when I could schedule this appointment, and she misunderstood and thought I was angry that I couldn’t get my PET scan at that very moment, and I’m, like, “No, I just need to know when I can schedule this appointment. I was told to schedule it, but there’s no order in the system. When should I schedule it? 1 hour from now? 3 hours? When?” She said give her 15 minutes. I said thank you and stormed out of the office.

We got the PET scan scheduled for Friday (this was on Monday; the waiting and the insurance are the two biggest pains in the ass when it comes to cancer). However, my sister was extremely unhappy with how things had been handled, so she made a complaint with the hospital, and voila, my PET scan and surgery consultation (for the biopsy) were scheduled for the following day (Tuesday). I spent the day alternating making phone calls to the parents of students failing my online summer school class and receiving phone calls from the hospital billing office and my insurance company about issues with pre-approval of the PET scan. At one point, someone from hospital billing called to say that I would have to pay $3680 for the PET scan if my insurance company didn’t approve it in time. So I lost my shit. “I’M FUCKING DYING HERE AND YOU DON’T EVEN CARE; YOU JUST WANT YOUR MONEY, AND I THINK THAT’S BULLSHIT!” Blah blah blah. I don’t even know what all I said but my mom gently took the phone from me and spoke to the woman (who felt really bad). I ran into the living room and screamed and then did some speed-walking laps around the first floor of the house. After my mom hung up with the lady from billing, she said that she didn’t care what it cost, I was getting the PET scan done tomorrow, and if she had to pay for it out-of-pocket she’d go to the bank and give those assholes their money in quarters. Luckily, the procedure was approved in time.

Tuesday morning I was injected with radioactive sugar so that my hungry cancer cells would light up on the PET scan. After the scan we headed to the hospital to see the surgeon. She was great, and she got us scheduled for the biopsy the following day. I went home and waited for the PET scan results. Someone from scheduling called and said I needed a Covid test before I had surgery the next day (to remove the lymph node needed for the biopsy), so Mom and I drove back up to the hospital and I got the test in the convenient drive-thru line, and then we headed back to my parents’ house. When we were about a mile away from home, the hospital called to say that I didn’t need the test. They had changed their policy and sent out a memo when I was en-route.

At 4:02 pm my phone dinged, and I knew what it was. I got on the hospital app, and there were the PET scan results. Jargon, jargon, jargon, then “multiple pulmonary nodules are present…and are highly suspicious for metastatic disease…left 10th and 3rd rib metastasis, metastasis to the sacrum and possibly L2 vertebral body” blah blah blah. I was in the kitchen working on summer school stuff when I got the results. I was in shock. I really didn’t think it would be in my bones. That just seemed too extreme. I really thought that it would just be in my lymph nodes and lungs. I walked into the family room and told my mom. She was in shock. My dad was asleep in his chair downstairs, so I went and woke him up and said, “It’s bad. You need to come upstairs.” They held me and I cried and I just repeated, “I can’t believe this is happening.”

I called my sisters and boyfriend and they all came over. My sister asked if I had heard from my oncologist yet, and I said “no.” She was livid and made another complaint to the hospital. The nurse eventually called me to say that my oncologist would call me in the morning. She did, and she said something to the effect of, “I know that someone in your family is not happy with the care that I’m providing you, but please know that I am doing my best for you and that the complaints don’t really do anything but hinder the process,” and I’m thinking, “Maybe they’re a hinderance to you, but all I know is that they got me in for my scan and surgery consultation ASAP.”

I don’t know why the biopsy didn’t show any cancer back in December. I don’t know why it was standard protocol to look at my blood every 6 months when my bloodwork always looked good. I had bloodwork done on June 4 and it was fine. I looked back at my CBC (complete blood count) from when I was first diagnosed with breast cancer in 2015 and it was fine. Why did my doctor put so much stock into my bloodwork (as opposed to scans)? I never had even just one scan in the years following my mastectomy. My oncologist said bloodwork (not scans) is standard practice for follow-ups in the first 5 years post-diagnosis. I know that anger is a common response to cancer recurrence. You want someone/somebody to blame, but really it’s just Rule #1: Life Is Unfair. I don’t want to be consumed by anger because it is not healthy. The only productive thinking will be focused on treatment.

I’m waiting on the biopsy results right now. These will tell us what kind of cancer it is (most likely it’s recurrent breast cancer). If it’s breast cancer, we need to know the hormone status (it’s easier to treat if the cancer is hormone-fed) and HER2 status (we want it to be HER2 negative; HER2 is a protein that promotes the growth of cancer cells). My original breast cancer was hormone+ and HER2-, so that was good. However, I’ve been taking Tamoxifen since 2016, and this is a drug that is supposed to suppress your body’s production of Estrogen and Progesterone (which are the hormones that feed my cancer cells). However, I’m concerned that this new round of cancer is hormone negative, or else how would those cells have been able to grow? There are no female hormones in my body to feed them (or at least there shouldn’t be any female hormones in my body if the drug is working properly). I don’t know. I’m not a doctor.

All I know is that most people who get cancer start to lose weight but I’ve just been getting fatter, so if that ain’t some bullshit, I don’t know what is.

I’ll report back with biopsy results.

*Update: Pathology came back and it’s hormone-positive metastatic breast cancer. The HER2 status needs further investigation because the initial results were inconclusive (this is common), so my lymph node is being sent to the Mayo Clinic. I’ll know in 5-10 days.

When the surgeon called to discuss the pathology, I asked why the Tamoxifen didn’t help prevent my hormone-fed tumors from growing, and she said that, unfortunately, some drugs just don’t work on certain people. Like, Aspirin doesn’t work for everybody. Luckily, there are other drugs out there that I haven’t tried. So much money has been donated to breast cancer research, and new drugs are becoming available all the time. There are medications available to me now that weren’t 5.5 years ago when I was first diagnosed.

This is a chronic disease and not a death sentence.

The Friend Zone Blues: A Tale of Broken Hearts and Broken Bones

My previous post was supposed to be my last post but it turns out that it was my penultimate post because I fell off of a fucking rock and now I need to write about it.

I broke myself on the first day of summer break. My friend (whom I’ll refer to as Friendzone) texted me that afternoon and asked what I was up to. I told him that I was watching Netflix but that I was up for doing something else. My default suggestion for socializing is to get a drink, but this time I followed that up with “I guess there are other things to do!” He suggested indoor rock climbing.

Friendzone is a very fit, active man; he’s all muscle. I, on the other hand, am almost obese according to the BMI scale (thanks, Tamoxifen), but my chubby ass was willing and interested in participating in a social activity that involved burning calories instead of consuming them. I drove over to FZ’s place; he gathered his rock-climbing gear (of course he has his own rock climbing gear), and we drove to the climbing gym.

We signed the waiver; I rented my gear, and we got a brief orientation on how to use the ropes and harnesses. Before long, I was using my limited upper body strength to scale the faux rock walls. It was hard. I was a bit scared once I got to the top of the wall and looked back at the ground below me. “So, Friendzone, you’re sure that once I let go, this rope will allow me to just ease on down the wall?” It did, and it was fun. I climbed a couple of spots throughout the gym, never going all the way up because it was just too hard. I was not strong enough and I had maxed out my muscles on that first climb. Plus, it was more entertaining for me to watch others who were good at it, like Friendzone. His sinewy frame could scale the walls quickly and adeptly.

As we both sat on the soft floor (even FZ was tired from the climbing), he suggested that we try some bouldering. This is where you climb on a short wall without any ropes or harnesses. I went first. The “rocks” on the wall are color coordinated to help you navigate the most streamlined path, and I chose the yellow ones since they appeared to provide the easiest route. I grabbed a few rocks, got up a few feet, and I went to grab one last jutting yellow stump, but I didn’t quite latch on. I felt myself slowly tuuuurning, and then BAM! I fell on the only non-padded part of the gym. The moment I landed I said, “I broke my arm,” delivering it in (what I remember) to be a tone that was both matter-of-fact but tinged with fear.

When asked if I wanted someone to call 911, I said yes because I wanted to be prepared to treat the pain once it reared its ugly head. Friendzone stood near me talking to the climbing gym employee who had come over to write up an incident report. Once the EMT’s finally arrived, they asked Friendzone, “What’s your relationship to her?” “Just friends,” he said. Just friends.

Before we go any further with this story, I need to take you somewhere.  

There is a fifth dimension beyond that which is known to most romantic couples. It is a dimension as vast as space and as timeless as infinity. It is the middle ground between acquaintance and lover, between disregard and commitment, and it lies between the pit of man’s insecurities and the summit of his love. This is the dimension of imagination. It is an area which we call…

friend zone

I don’t know if you’ve ever found yourself in this confusing and frustrating territory, but it is a land of alternating hope and disappointment, excitement and pain, and I discovered the farthest reaches of it…on the floor of a rocking climbing gym.

About a month before this, I had told Friendzone that I had caught some feelings for him; he told me that he liked me just as a friend (but that he really liked hanging out with me). I was 99% sure he was going to give me that response, but I’ve never had someone with a Y chromosome give me so much attention without trying to have sex with me, so I had to be sure. I was confident that since I had revealed my feelings for Friendzone, he would back off, but nope. The day after we had that conversation, he invited me to hang out. I told him I’d accept his invitation only if he promised that we could go as Daenerys Targaryen and Sir Jorah Mormont for Halloween (he would be Dany of course) (that is a Game of Thrones joke). I knew our relationship would eventually cause me pain, but I didn’t think it would lead to multiple broken bones.  

So let’s get back to that. I’m lying on the floor; I’m not moving, and it’s not that I’m afraid to move, but my mind doesn’t even seem to consider that a possibility. There are some climbers who work in emergency medicine, and they come over and ask if they can help. I say, “no thank you; the EMT’s are on their way.” I’m not in an overwhelming amount of pain; I’m just scared because I can sense that something is not right with my arm and my foot. The fear put the pain into submission, and therefore I just lie still and wait for help. As I mentioned, I fell in the only spot that didn’t have padding because it was by the hallway that led to the restrooms and lockers. Therefore, people had to walk over and around me, as if I was something as quotidian as a Caution sign. It felt as if they didn’t even notice me, and I thought, “Well if this isn’t a fucking metaphor for my life, I don’t know what is.”

The EMT’s got there. They asked for my health history. “Breast cancer and hypertension,” I said. (Damn, dis bitch got real problems I’m sure they thought). They wouldn’t be able to get a stretcher across the spongy floor of the climbing gym (the 99% of the floor that I managed to not fall on), so they brought in what was basically a moving dolly. When they put me on it, I heard a pop in my elbow, and we hoped that that meant the joint had just been dislocated and that it was now back in place.

Once they got me outside, they reminded me that I didn’t have to take the ambulance, and I’m glad that they did that because it would have cost me at least $1000 bucks. I had called the EMT’s to provide me with two services: 1) to give me medicine in case I started to feel overwhelming pain, and 2) to help me get out of the gym (since I fell in the very opposite corner of the front doors). The pain never got to be overwhelming, and they got me outside as quickly and as painlessly as possible, so they’d done what I had needed them to do. Therefore, I decided to have Friendzone drive me to the closest ER, which was at SLU hospital.

On the way there I called my mom. I told her that I was alright, but that I had fallen at an indoor rock climbing gym and that I was headed to the SLU ER. My sister later told me that when my mom answered this call, she had just come inside to take a break from working outdoors. She had felt nauseated from laboring in the heat and needed a break. Poor Mama.

I got to the ER. They took X-rays, and that’s when I was in the most pain because they had to manipulate my elbow and ankle in various directions in order to capture all angles. I knew that as technicians (as opposed to physicians) they couldn’t tell me what they saw, but when they wheeled me out to the nurse’s station, I could tell by the technician’s tone (because I didn’t understand his medicalese) that it was probably bad. The nurse gave me a pain reliever and put me on a stretcher; she told me that a doctor would be with me in about 25-30 minutes. My mom had called a few times from the lobby and was desperate to see me, so they finally let her back.

Sure enough, within the next half hour, a doctor showed up. “You really did a number on your elbow,” he said. He had a congenial way about him. “What did you do?”

“I just wanted a paloma, doc, but my friend wanted to go rock climbing. This is what I get for trying to break out of my sedentary existence.” He just smiled. I liked this doctor; he put out a good vibe.

“We’re going to have to sedate you to set your elbow, and then you’ll have surgery next week.” I did not expect that. At some point they told me that my ankle was also fractured but that it was a clean break, so no surgery was needed on the lower limb.  

While we waited for me to be taken back for The Setting of The Elbow, my mom told me that she had invited Friendzone to our family Fourth of July bash. It’s usually a helluva party, and a potential invitation to this event is how my parents measure the quality of a new friend/boyfriend of mine. Any time I start to date someone, my dad asks, “Would he be fun at the Fourth of July party?” I guess my mom determined upon meeting FZ in the ER lobby that he was worthy of an invitation, and I can’t say I blame her for extending this offer during her first encounter with him because he is truly a charming individual. She said he felt really bad, and I asked if he was still in the waiting room. He was, and I was touched by that. I told Mama to go out there and reassure him that I wasn’t mad and that he should go home.

Soon they get me back in a room. A pleasant young resident prepares all the necessary accoutrements, and we chat. I feel like I’m talking to one of my students. Then all of the other doctors come in, including the friendly one that told me I did a number on my elbow. An attractive orthopedic surgeon comes in and takes charge. My dear friend Julie, also a doctor, has since informed me that most orthopedic surgeons are hot, that’s it’s sort of a requirement for setting bones.

In situations like this (shitty ones) I like to be the clown; it’s a deflection technique that I’ve mastered. You can’t feel pain if you’re laughing, right? (actually, you can, but it assuages it). I asked if I could see my X-ray that they were looking at; I couldn’t really distinguish much, but I asked, “Now in your medical opinion, would you say that that is a pretty gnarly break?” And they laughed. “Yes, pretty gnarly.”

It felt like there were about 20 people in the room, but when I think back on it, I believe my audience included: Dr. Friendly, the orthopedic surgeon, the resident, two medical students standing idle in the corner and whispering to each other, at least one nurse, and I think someone else was looking at the X-ray. I don’t know if they had given me another sedative at this point or if I was just in the zone where I start saying crazy shit because I’m uncomfortable, but I told them that this moment reminded me of the time when I had to visit the doctor’s office because of some minor anal bleeding. It was when Julie was in medical school at SLU, and I used to party with her medical school friends. When I went to have my ass examined, there were a few SLU med students in the room, and I remember being so embarrassed thinking that I may haven taken Kamikaze shots with these people and now they were looking at my anus. Doctor Friendly smiled and said, “Well, we’re not looking at your anus today,” and the students giggled in the corner. I followed that anecdote by saying, “I don’t know how you guys work in an ER; this place is nuts. My aunt is the lead receptionist at an ER, and she has some crazy stories. Lotta people putting things in their rectum, am I right?”  “Yes, we get that a lot,” Doctor Friendly replied.

They told me they were going to give me Ketamine, and I’d heard of this stuff before. It goes by the name ‘Special K” on the street and in the club. And gawd damn, ya’ll, I tripped my balls off. I’ve never done psychedelic drugs before; I’ve always been a bit curious about what it would be like to have an out-of-body experience, but I was always too afraid to actually try anything. But now I can say that I’ve had an out-of-body experience, and it’s hard for me to describe it with any accuracy. It was as if I was floating and gradually coming down into different dimensions, eventually returning to reality. I remember the color blue. I remember a maze. At about mid-level in The Coming Down, I could hear myself yelling, but it was Sedated Jenny who was yelling and Floating Jenny was just listening to her. I remember it felt good to yell.

I AM DIVORCED!” I remember yelling. “FZ DOESN’TEVEN LIKE ME!” MOOOOAAAAAAN. LAUGH. YELL. MY LIFE HAS HIT ROCK BOTTOM!”

As I came down into a near conscious level, I remember feeling like I was more in control of my words. “You’re gonna have a helluva story to tell your family tonight, aren’t you?” I remember saying to the nurse whose figure I could begin to discern in the fog of approaching consciousness.

Eventually I was in a recovery room, and my mom and sister came in. My sis said that I had a wild look in my eyes and that I was smiling like a crazy person. She came to my side and I said with emphasis, “This is a pivotal moment.” Clearly I was still tripping, but I quickly entered the zone of reality and asked for my phone. I saw that I had a Facebook notification. When I had rented my gear at to the climbing gym, I was told that I could get a discount by checking in on Facebook, so I did. I knew that by doing that, people were probably going to think that I had been hacked. I hadn’t posted anything in over two months, and now I was checking into a rocking climbing gym? My girl Emilie commented, “It’s like I don’t even know you anymore.” And I responded with a picture of me on a stretcher with my arm and leg in a cast with the caption: “I got a discount for checking in on FB, but now this is me. I just took come Fentynol, so ::peace sign emoji::

They wheeled me to my hospital room. I had to share it with a woman named Esmerelda or Samira or something like that. She was eventually moved because, according to my mom, she thought we had stolen her lottery ticket.

I was really disappointed that they didn’t give me a catheter (they said it was too likely to cause an infection). I had expected it because I had been given one after all of my cancer-related and breast reconstruction surgeries (I’d also always had a private room after those surgeries, but SLU is a much older hospital and has limited private rooms). Having a catheter is my favorite part of being in the hospital because I always have to pee multiple times at night, and the catheter takes away that burden. But not at SLU. This was BedPan City. If there’s one complaint I have about the care that I received at SLU, it’s the nurses’ lack of bedpan-changing skills. Actually, it was just one of the nurses, and now that I think about it, it was just one 12-year old nurse’s assistant who came in on what I believe was my third day in the hospital (and she later told me that she was new, and so I was empathetic toward her because I’m sure I would have done the same thing in her position).  

BUT, in case you ever find yourself having to assist someone in using a bedpan, here’s what you do:

  1. Slide the bedpan under the patient’s ass (I had full strength on my right side, so this made it easier on the nurses since I could lift myself).
  2. After the patient has peed, take the bedpan and put it on the floor.
  3. Wipe the patient’s wet ass cheeks BEFORE walking to the bathroom to dump the piss so that the patient doesn’t have to stay in an arched position, suspended above the mattress, supporting herself with one leg in order to keep her bed from getting wet with urine.    

*Just like the nurses must have felt, you’ll be happy to know that I never had to shit in the bedpan because of all of the painkillers that I was taking. If my brain even senses the presence of a painkiller, it’s “NO SHIT FOR YOU!”

At some point in the middle of the night (or maybe very early the next morning? I essentially had no sense of time for about 36 hours) the nurse told me that they were going to try to get me into surgery ASAP. I slept for short chunks of time (I was frequently awakened for vital sign checks and blood draws). A team of doctors (including the attractive one who had set my elbow) came in early and told me that they were just waiting for confirmation on getting me into the operating room. Obviously, more serious traumas took precedence, and since it was Memorial Day weekend, there were fewer surgeons available. The good-looking doctor asked what I did for a living, and per usual, he followed it up with, “What’s your favorite book to teach?” I was still groggy, and I responded with a lame, “I guess whatever I happen to be teaching at the time.” He said, “Oh, that’s a cop-out,” and I smiled and said, “OK, I guess The Great Gatsby,” and the doc squad left right after that. I heard one of the young ones say, “Isn’t that the one about the guy who loves a woman but she doesn’t love him back?” “Yes,” I thought. If only those circumstances could be limited to fiction…

Then at about 9 AM the whole fam came to see me. We laughed about my Ketamine trip; we laughed about a text my sister had sent me. The movie Deliverance has a special place in our family. (Growing up I never actually saw the movie; I would only hear some of it while the men in the family watched it in another room, and I frequently heard it quoted by adult family members in edited form, usually on float trips down the Meramec RiverI was about 19 or 20 when I actually saw it…and realized it wasn’t an actual pig that I heard squealing…) Anyway, if you’ve seen the movie, do you remember this scene? Just replace the word “river” with “indoor rock wall” and that’s what my sister texted me after I fell. → Funniest damn thing I ever read. Our family’s affection for that movie started with my PawPaw (who used to enjoy white water rafting), and so when I talked to him on the phone that day, I told him about my sister’s joke, and that cracked. him. up. Both of my sisters are hilarious. My other sister was laughing about that Plies song “She is My Rock” (“She fell off of a rock ock ock ock ock ock ock.”) Dat. Shit. Funny. She also designed t-shirts for me, my mom, and my other sis that say “I JUST WANTED A PALOMA.”

I guess it was probably early afternoon when I was told that I’d be going in for surgery. Another hot orthopedic surgeon (who was sans wedding ring) was going to be performing the operation. I asked if the fact that I was postmenopausal due to chemotherapy and Tamoxifen contributed to my bad break, and he gave me an ambiguous answer. I asked if the break was going to lead to lymphedema issues since I had had lymph nodes removed on that side. He gave me another ambiguous answer. However, I’m OK with ambiguity. If you’re not OK with ambiguity, you’ll go insane. 

Eventually I was out of surgery. It took four hours. Hot Doc told my mom that when he opened me up, it looked like a bomb had gone off: bone shrapnel and twisted tendons needed tending. Apparently both sides of the elbow had been flipped the other way. My left forearm is still numb. Apparently your nerves can go into a “coma” when there’s trauma.

So surgery was on Sunday, but I didn’t get to leave the hospital until Tuesday afternoon. I assume that was because it had been a holiday weekend and so everybody/everything was behind? Hell if I know. Luckily, I was on drugs and sleeping most of the time, so I was never bored. I was hot, though, and if you know me, you know I get hot. Even before I was postmenopausal, I was always hot. So my internal heater combined with a lack of sufficient air conditioning made for a sweaty Jenny. The room was made even hotter by the fact that half of East St. Louis was in there. Why? Because my new roommate had been shot by an AK-47 over in East St. Louis. Kinda put things in perspective for me. If I had had my full wits about me, I would have been able to do more eavesdropping, but I was sleeping a lot. I didn’t even have my privacy curtain up, so I’d just wave at the constant influx of folks; most of them would humble themselves and nod as they walked by, some of them offering a “How ya doin?” on their way in or a “Have a good day/night” on their way out.

I appreciated people’s texts and calls. Many offered to visit me or bring me whatever I needed; I told them all “No, that’s OK, but thank you.” However, Julie said she had made homemade rainbow cake, so I said, “Yes, please come visit me.” I have friends who work at SLU, so they stopped by. Being sick/hurt is an unfortunate yet effective way to be reminded of the goodness in others.    

On Tuesday, my sister came to spend some time with me (in hopes that it would be my last day in the hospital and she could take me home). I had two brief sessions with a physical therapist, and apparently the only thing holding me back from being released was that I needed a hemi-walker. Because of the Memorial Day holiday, there was a delay in ordering it and, therefore, in receiving it. My sister asked, “If I just go to a medical supply store and buy one, can she leave?” and the nurse was all, “yes.” So my sis went and bought me a hemi-walker and stopped by my house to pick up some stuff I requested (and on top of that made my bed and took out my trash and folded my clothes), and I got to leave the hospital. We drove to my folks’ place. The last time I convalesced there (after my mastectomy) my sister Jessi and her family were living there because they had sold their house and were looking for a new one. Now two years later, in my second round of convalescing at my folks’ place, my sister Emily and her family were living there because they had sold their house and were now on the hunt for a new one. So my convalescing is always a family affair. Mom works full-time now, so it was perfect that Emily’s current occupation is a stay-at-home mom. Em took care of me. She cooked for me, gave me my medicine, changed the dressing on my stitches, kept my water bottle full. She said it really wasn’t any different from taking care of Ella; it was actually easier: I didn’t shit my pants and I could verbalize my needs.  

I had my mom bathe me, though. If I can’t wash my own ass, then the only other person I want doing it is my mama. After nearly a week with no shower, it was time (it was actually way past time). We had a portable toilet that we’d been keeping downstairs (since that’s where I had been sleeping) and I suggested we bring it upstairs into my parents’ bathroom to help with the bathing process. We could remove the bucket and I could sit on the hole, and therefore the detachable shower head could get up under there and clean my nether regions. At first we put it in the tub so that I’d be facing forward in the shower (as one does when taking a shower), but I couldn’t angle my body in such a way to get in the tub and sit on the hole. Because my left side was out of commision, I didn’t have the strength to balance and support myself in such a way that I could maneuver myself onto the seat. Therefore, we turned the apparatus so that it faced outward; it was closer to the edge of the tub and therefore I could just easily sit back on it. That meant that while my mom was bathing me, I’d be staring at myself in the mirror that encompassed the entire opposite wall of the bathroom.

It was not a pretty sight, but I laughed: Nude. Chubby. Pale. Titty scars. Port scar; Big ol’ boot on my foot. Left arm covered in a trash bag to keep the brace from getting wet. Sittin’ on a toilet in the tub. My mom scrubbing my head vigorously with shampoo in a way that reminded me of being a kid (Geez mom, you’re doing it too hard! But I didn’t say it aloud).

I got caught up on Handmaid’s Tale. I had people come visit me. Then on the following Thursday I finally got to leave the house for my my follow-up appointment with Hot Doc (who was still not wearing a wedding ring). Emily made some joke about me using a Shake Weight for physical therapy and I couldn’t stop laughing. Hot Doc was like, “Are you alright?” and then he kept using the word “stiff” when describing what I needed to avoid in order to allow my elbow to heal, and I was trying so hard not to make jokes (What’s stiff? Are you stiff? I wouldn’t mind if the two of us got stiff together.)

Hot Doc gave me permission to stop wearing the brace when I’m at home, so that made big strides in my quality of life, especially with sleeping. He said that I could fully immerse my arm in water (read: I could now bathe independently), so if I was comfortable with it, I could go back to my house. I was ready to not feel like an invalid, so the next day Emily drove me back to my place. I see Hot Doc on July 12, and he’s hoping that at that point I can stop wearing the brace and the boot altogether (and therefore start driving again).  

My second time being back out in the world was at a funeral this past Saturday. My friend Tanya, my co-chair for The Breast Dance Party Ever, lost her boyfriend to cancer. A little under two years ago, he came to a barbecue at Tanya’s house looking like complete shit. I thought he had a bad cold or was extremely hungover. He went to the hospital a few days later and discovered he had cancer, and he later learned that it was an extremely rare and aggressive form and none of the various treatments he tried worked for him. When I last saw him at the very end of February, I got to his hospital room before Tanya arrived. I peaked in his room, and at first I was unsure if it was him because he looked so old, so I double-checked the room number. Yep, this was his room. We were able to talk for a bit before Tanya arrived, and he told me that he didn’t think he would make it to summer (he died a few days before Memorial Day). I remember thinking that if I had been in his shoes, I would have been pissed. Here’s this woman who had a simple case of straightforward cancer and did her chemo regimen and now she’s just fine and planning a dance party and I’m stuck here dying. Bitch. Again, I don’t think that’s what he was thinking when he was talking to me; that’s what I would have been thinking if I was him. My survivor’s guilt at his funeral was tempered by my broken left side. And I know that Tanya’s pain is much more substantial than mine. A shattered elbow is nothing compared to a shattered heart.

I had texted Friendzone when I got to my parents’ place after leaving the hospital (per his request). That was on a Tuesday, and I knew he would be leaving for Europe that Friday. (I met him at the end of February, and since then he’s been to Tokyo, Hong Kong, Nairobi, Kenya, Estonia, Sweden, and Germany–some for work, some for play. His life is enviously interesting). I was really hoping that he would make the drive out to my folks’ place to come see me before he left, but I didn’t even hear from him for a week. When he finally texted me, he asked how I was doing and he wanted to know if we could hang out when he returned from Europe. He was only going to be back for a few days before he had to leave for New York. Those few days are happening right now. He texted me on Sunday (the day he got back) to find out how I was doing. Who knows if I’ll hear from him before he leaves again.

In his various texts, Friendzone told me that he felt bad that he hadn’t been there to catch me; he told me that he felt like he had ruined my summer. I told him that I didn’t really even like summer that much, that I preferred the fall (I guess I should say ‘Autumn’…) and that I planned to really live it up during that season. He said he’d be right there with me buying me drinks. I told him I didn’t blame him for my fall (because I don’t). I know he feels guilty, but he feels guilty because of my broken bones. I want to tell him Baby that’s not how you hurt me.

I get it, I’m not his type (his longest relationship was with a Brazilian model). It just makes me feel old and fat knowing he’s seeking out someone who’s prettier than me. I get a little angry when I think about the fact that he’s not making an attempt to see me; I just assume it’s because he’s probably going on dates with younger, thinner women.

I believe that most of what happens to us is a result of the energy that we put out into the world. It tells the universe, “This is what I deserve,” and then the universe responds accordingly. I clearly need to start loving myself more, taking better care of myself, and living mindfully and purposefully. I think that when I heal up, I’m going to drive to the middle of nowhere and shout, at the top of my lungs,

“I’M READY, WORLD! I’M READY FOR GOOD THINGS! I LOVE ME! I’M READY FOR SOMEONE TO LOVE ME! I’M READY TO FEEL CONTENT! I’M READY FOR NEW OPPORTUNITIES! I’M READY, UNIVERSE! I’M READY!”          

*I feel like I gave my sister Emily a lot of props in this post, but Jessi deserves them, too. She came over last night and brought me groceries, made me lunches for the week, did my dishes, folded my laundry, and bought us pizza. Thanks, Ug (but you still look bad).       

Exeunt

I don’t know if it’s the Tamoxifen or my age, but I’m slowing down a bit. Yesterday I went out for brunch to celebrate my birthday, and when I came home I watched television for about an hour before I eventually succumbed to a three-hour nap. I couldn’t bring myself to get off the couch to go see our school play (that many of my students had been asking me to go see #guilt), so I continued to watch television on the couch until about 8. At that point, I decided to move my horizontal situation to my bed, and I spent about an hour of my Saturday night reading a textbook on literature and composition before I once again slipped into slumber. I woke up at 4:30 AM, but then fell back asleep, finally coming into consciousness at 10:30 AM. This is my life.

I’ve gained 30 pounds since my lightest weight during chemo treatments. I swear I don’t eat any differently than I used to. I’ve always had a voracious appetite, but my metabolism can no longer keep up. I am a post-menopausal woman now, and I am not doing enough to combat the physical consequences of this. It’s a good thing that my cancer was hormone-induced because there are clear-cut ways to prevent a recurrence. Have a tumor that’s fed by estrogen and progesterone? Cool, you’ll just take meds that suppress the production of those hormones. Chop off your tits; take this pill; you’re good. The main side effects of that pill, though, are weight gain, loss of libido, and hot flashes. I would also add “complete inability to handle people who drive 60 in the left lane of Highway 40” to that list. I’ll be 46 when I can stop taking Tamoxifen, and that’s also about the time that my student loans will be paid off. This makes the aging process a bit more tolerable. I’m just warning ya’ll: 2026 I’mma be on. the. prowl.

I wonder about the difference between my brain and the brain of someone who actually sticks to a diet/workout plan. I work with people who have lost significant amounts of weight. They decided to start incorporating regular exercise into their daily routine; they eat healthier foods, and they’ve been able to maintain this lifestyle for a few years now. Why don’t I want it badly enough? Why are they able to do this, and I am not? I know, I know: I could do it if I wanted to, but why am I not doing it? I want to live a healthy life. I want to live as long as possible. Health and longevity are clearly so much more important than french fries, but I continue to choose french fries. Back in the fall I bought a monthly pass to a dance/fitness studio, but I never went. They were kind enough to grant me an extension, but still I never went.

There are little differences I notice in my post-cancer life. I think that with the loss of libido, there’s also a general loss of drive in all aspects of being driven. I used to take pleasure in strolling around stores and looking at things. Target, Hobby Lobby, HomeGoods, Treasure Aisles (the antique store on Big Bend). But now I would prefer to sit on the couch. You’re probably thinking, “Jenny is clinically depressed,” but I’m not. I’m just low-energy. I know the main way to combat this low energy is to incorporate more exercise into my life. I used to really enjoy walking; I live right by Forest Park. However, now couch-time always wins.

Another intensified mammalian experience that’s Tamoxifen-induced is how I smell. My hair/scalp begins to emanate an earthy aroma if I don’t wash it regularly. I used to be able to go days without shampooing my hair, and it would never smell (p.s.- It’s not good for your hair to wash it everyday; that’s not just me being lazy). My armpits tend to ripen a bit more quickly. That allium odor unique to the underarm develops more quickly than it used to. And this noisome situation is problematic considering I value sleeping more than showering when it comes to those dark winter mornings.

I’m not joyless, though. I’m just lethargic. And I WILL do something about this; it WILL happen. It’s just not happening right now.

What is happening right now is planning for The Breast Dance Party Ever. I can’t believe it’s less than a month away! (It’s on March 9; do you have your ticket yet?). I’m not a religious person; I don’t believe in subscribing to one book, but I do believe we all have a responsibility to help each other. If I had my own children, I would tell them that there are two principles that should guide their life’s choices: 1) Help others, and 2) Whatever you do, do it with purpose and passion. Essentially, help others but also help yourself, then everyone wins. Your life will have meaning. I host this party not only because I like to dance and drink and laugh with my friends and family, but because I feel a moral obligation to help my sisters in the struggle. I can’t imagine how difficult it would be to undergo chemotherapy or recover from a mastectomy as a single-parent without an external support system. It would be darn near impossible to do. The organization that TBDPE raises money for is Gateway to Hope, a St. Louis non-profit that provides, among other services, financial assistance to breast cancer patients. Again, if I had been a single-parent or the main bread-winner in my family when I was undergoing cancer treatment, I would have been screwed. I had good health insurance, yet I still got a few bills that ate up most or all of my paycheck (but I was able to live with my folks, so I could handle this financial burden). When I took time off of work to chop off my tits and get new ones made, I wasn’t getting paid. Not only does Gateway to Hope help women cover their medical expenses, but it also helps in other ways, such as providing childcare or cleaning services. The organization was started by two physicians whose breast cancer patient died due to not being able to pay for her treatments. I’ve said it before, but I’ll say it again: only get cancer if you’re rich. I’m still paying off the anesthesia bill for my new nips, and I don’t even get to show them off to anybody. I’m the only one that sees these damn things. So will you help me help others? (while at the same time having a friggin’ blast?) Buy your ticket to The Breast Dance Party Ever and dance…because you can.

I’m going to put an end to Check Those Titties. I just wanted to say thank you to everyone who gave me such positive feedback and encouragement while I over-shared on this blog throughout my cancer experience. I hope I see you all on March 9 as we support others and celebrate the life and health we should all be so grateful for.

I’ll Take It

One night in December 2015, I was lying in bed when my best friend Anne texted me with some major news: her husband, Brian, had been hired to fly for Southwest Airlines and she was pregnant with their third child. When I received that text, the 48-hours-post-chemo-sickness had just hit me, and it was intensified by the fact that it was the fourth and final Red Devil/Cytoxan treatment; four rounds of that toxic but necessary concoction had coursed their way through my veins by that point and their destructive forces had reached their apex. Although I was genuinely happy for Anne, my immediate reaction to this news was to sob. Her storybook life (the house, the kids, the husband) juxtaposed against mine (living with my folks, dealing with debt, divorced, cancer-ridden) depressed me. I was not satisfied with my life, to say the least.

Just yesterday, on Oct. 22, 2017, I was at Jefferson Barracks Cemetery with Anne and her daughter (her youngest child, the one who’d been an embryo when I received the aforementioned text). It was Anne’s birthday, and we went to visit Brian’s grave. Last January he was diagnosed with a rare blood disorder, and about a month and a half later, he was dead. Anne’s cousin Sarah came with us to the cemetery, and she and I took the baby and let Anne have some time to herself at the gravesite. As we walked away, I cried and relayed that story about the text to Sarah. I told her that, when I received that message, I couldn’t help but compare all of the joy in Anne’s life to all of the disappointment in mine. “But here we are now,” I said, shaking my head, looking around at a sea of cement gravestones arranged in geometric precision.

Brian was one of my favorite people. Yesterday, in honor of Anne’s birthday, I wrote her kids a letter (to be read when they’re older), telling them some of my favorite memories about their dad (and their mom). Obviously, I kept it PG. I didn’t tell them that their parents were on the bottom bunk while I was on the top losing my virginity in my dorm room freshman year of college. Instead, I told them about how, that same year, their dad had told me that he didn’t like being a Finance major, and that he wanted to be a pilot instead. I admitted to the kids that I didn’t take this comment very seriously. However, the next school year Brian enrolled in the Parks College of Aviation at St. Louis University, and from there he went on to fly for the Navy and the Air Force, and in his final year, for Southwest Airlines. I told the kids that their dad was a man who lived his dreams.

It’s such bullshit that Brian is dead while millions of murderers and rapists and mouth-breathers and other various people of ill-repute roam freely about the earth. I must remember my mantra: “The universe is under no obligation to make sense to you.” I whole-heartedly believe this. If my cancer experience taught me anything, it’s this.

I’ve been feeling old lately. Actually, I shouldn’t say ‘old.’ It bothers me when people in their 30s say that they’re old. I’ll say it sometimes to be funny, but I don’t mean it. It’s ridiculous for a 30-something to say he or she feels old when, in 2017, the average life span is close to 80 years. What I mean by “old” is “not young.” If I was a banana, a picky eater might throw me away because of a few light brown spots, but I’m certainly not ready to be made into bread. I don’t have the energy that I used to, and I’ve gained 25 pounds since my lightest weight (which was a year and a half ago, after my mastectomy). I don’t know if the fatigue and the weight gain are a result of the Tamoxifen or if I’m just getting older (it’s probably a combination of both). Regardless, I need to start working out and eating better. I want to look better. I want to feel better. I want to be as healthy as possible. Last night I signed up for classes at a fitness/dance studio, and I’m hoping that I love it so much that I go every day and gradually lose 50 pounds. I’ve always thought that I’d become a late-in-life athlete (full-figured 30’s < fit 40’s, foxy 50’s, sexy 60’s). It could happen…

I’ve been feeling a bit “blah” lately. Usually when I feel like this I try dating (with the intention of finding a romantic connection to rekindle my spirit), but that always ends up exacerbating The Blah. I wonder if it’s possible for me to feel content for an extended period of time. Could I go an entire year feeling satisfied with my life? I don’t know if it’s in my nature. If I had the husband and the kids and the house, would I feel content or restricted? I think now that I’m in my late 30’s, I could thrive in those conditions since I’ve been able to sow my wild oats and see some of the world. Of course, now that I’m ready for that life, I’m infertile and waiting for all of the first round draft picks to get divorced. But I’m glad that I didn’t end up marrying any of the guys I dated in my early 20’s or having kids with my ex-husband. If I had settled down before the age of 30, I probably would have gone a bit nuts. Or become bitter. Or both. Or maybe not. Maybe I would have been very happy; who knows. All I know is that when I think about what would have happened to me if I had married and had kids with one of the guys I’d been romantically involved with during the first 30 years of my life, I think about Walter. Walter was a cat I once saw at an animal shelter. He looked at me with wild eyes and moved maniacally about his crate, spasmodically climbing up the metal bars that jailed him; he reminded me of a creature in a Lewis Carroll story. I swear to God, that’s the image my brain conjures up when I contemplate what my life would have been like had I settled into domesticity at a young age.

I think I’m destined for restlessness, and that’s better than complacency, so I’ll take it.

Side Hustle/Side Thoughts

I went to the doctor yesterday to have a colposcopy because the pap smear I received in June showed irregular cells on my cervix. I’ve had an irregular pap smear before, but this time there were two different spots that the doctor looked at (or at which the doctor looked if you’re pretentious and don’t like ending your sentences with a preposition). I seriously doubt that I have cervical cancer, but the last time that I seriously doubted I had cancer, I ended up having a walnut-sized tumor in my left breast. If I have another type of cancer, I am going to be PISSED. Not sad, not scared, but PISSED. Again, I seriously doubt that it’s cancer, but if it is, I will have to have a hysterectomy. I don’t mind the idea of removing my uterus. It’s a member of the Useless Organ Club that meets daily in my post-menopausal body (other members include my ovaries; I picture them as two grumpy, elderly spinster twin sisters who spend their days sitting on the front porch complaining about today’s youth). However, if I have to remove my uterus, then I’ll have to miss twelve weeks of work, and I can’t afford that. I’ve said it before, and I’ll say it again: only get cancer if you can afford it. Both my mastectomy/initial reconstruction surgery as well as my implant surgery were at no cost to me. Bill Clinton passed a bill (I love that it was good ol’ Billy to pass the Boob Bill) stating that if you have breast cancer and need reconstruction, then you get new boobs for free. It’s your consolation prize for having undergone chemo/radiation. However, the cherry on top of the reconstruction process–the nipples–is not free (because the cherry is not exactly necessary when it comes to the sundae). Insurance covered most of the nipple surgery, but I am responsible for $740 of it plus $400 for the anesthesia #creditcarddebt. I wish I had the discipline to save more money so that I could pay outright for large expenses such as these, but I enjoy going out to eat and travelling and buying stuff for my house and hosting parties and getting my hair done and buying Groupons for laser hair removal. I’m saving for retirement, so that’s good, but it’s basically negated by my student loans and credit card debt and my car loan. It’s terrible to say, but my only motivation to find a life partner at this point is to have someone to split bills with (with whom to split bills). But then I think about online dating and then credit card debt doesn’t seem so bad.

Enter The Side Hustle. I’ve been doing a lot of dog-sitting this summer. There was Libby the Shiba Inu, then Ronin the Goldendoodle, and this week there’s Frank the Labradoodle. Poor Frank has had diarrhea since Sunday evening when I started watching him. Luckily he’s a sweet boy, so when his piles of stinky, soupy stool on the dining room and/or living room floor greet me every morning, I can tolerate the clean-up process. The first morning I was here, I woke up to two piles of Frank’s diarrhea. As I was cleaning up the second pile, Frank started to shit again, so I took him outside. Because there is no fence in the backyard, I have to stay outside with the pup, and when it was time to go back inside, the door was locked. I had somehow locked the handle. Fortunately (surprisingly), I wasn’t overly angry/concerned; I was miffed. So I sat on the porch steps for a moment, sweating and contemplating my next move. I then walked around the home to see if any doors/windows were unlocked (nope). I tried the side door again to see if a miracle had occurred and the door had become unlocked (nope) (I’ll admit that I tried that three times). I could hear the trash truck on the next street, and I knew it was heading my way, so my first plan was to wait for the trash dudes to get to the house and ask them to call the non-emergency number for the police, who would then call a locksmith. The idea of knocking on the neighbor’s door and inquiring about a spare key crossed my mind at first, but I just thought it was unlikely that they’d have one, so I hesitated. Finally, I knocked on the neighbor’s door. No one home. I knocked on the other neighbor’s door, and voila! They had a key (which they kept per my friend/home-owner’s request because this had happened before). I went to PetSmart today and bought some special diet food for Frank, so hopefully (mainly for his sake), his bowels begin to stabilize and his poo begins to harden.

But the side hustle I’m currently most excited about is Hammered Grammar! (My mom came up with that name; good work, Mom.) My friend Amanda started working for The Novel Neighbor (an adorable bookstore in Webster Groves), and she is in charge of booking its new event space. I had done some professional development on writing at her previous place of employment, and it went really well and I had a blast, so when it was time to start booking events at TNN, she asked me if I was interested in teaching a writing workshop for adults. I immediately said yes, and then my eyes grew wide. “Oh my gosh,” I said, “can the course include drinking?” and Amanda said, “Of course,” and I was all, “OMG this will be so fun!” So there is the backstory. And here is my vision: Hammered Grammar is a course for adults who would like to polish their grammar/writing skills for professional and/or personal gain, but it is also a joke/storytelling event that includes drinking and spontaneous dance parties. It’s everything I want in a teaching gig: I’m allowed to drink and tell occasional R-rated jokes while providing instruction to motivated and engaged students who don’t need me to grade their papers. Ya’ll should come! Get your nerd on and do some learnin’ and drinkin’. I’m pumped! And, of course, I feel like I should know every English grammar rule in existence, so I’ve already revisited Strunk and White, and I’m currently reading Mary Norris’ Between You and Me. I sent Ms. Norris a friend request on Facebook yesterday, so let’s hope she accepts it…


So I think today would have been my 9-year wedding anniversary. Every July 18th I think, “Did I get married on the 18th or the 19th?” I’m pretty sure it was the 19th. Let me look on Facebook to see if anyone has wished my Aunt Brenda and Uncle George a happy anniversary (since I know I was married on their anniversary). Hold on…[*checks Facebook*] Well, nobody has posted anything on Aunt Brenda’s page, but I’m pretty sure their anniversary (and what would have been mine) is the 19th. What muddles it for me is that I got married in 2008, and that crazy ‘8’ throws me off (befuddles me). On the way home from PetSmart today I was thinking about the fact that I don’t remember my ex-husband’s birthday. I have a somewhat valid excuse because he was born in rural Lebanon where the people consider the day the birth is registered in town to be more significant than the day that one actually enters the world. He entered the world in December, but his birth was registered in January. Also, I can’t remember how old he is. I believe he is seven years older than me. My favorite memory of my ex is from 2007 when the fires overtook San Diego County; the flames literally made their way to the ocean. When our neighborhood was told to evacuate, everyone else was packing up their cars with valuables, but my husband was on our roof with a garden house, wearing a large sun hat and drinking a Corona. The other strong visual I have of The Ex is him sitting at the kitchen table in his tighty-whiteys grading Calculus tests, dipping tobacco, and listening to Black Flag. My favorite thing about him was that he could take his finger to his nose, push up on each nostril as well as the bridge, one section at a time, and white sebum would pop out of the pores. It’s so weird that I used to be married to him but I don’t even remember his birthday.


I just want to throw this out there: today, when I was leaving PetSmart, I saw a woman, probably in her early 70s, walking into Trader Joe’s, and I was so taken aback by her level of not-giving-a-fuck. She was wearing white tennis shoes and knee-high black compression socks. As a result, my eyes were immediately drawn to her lower extremities, but as I continued to look at her, my head moving upwards, I noticed her t-shirt had a large cat on it (a lifelike tabby sitting on its haunches). If I had been wearing a hat, I would have tipped it in her direction.

Keep it random. Stay cool, and remember:

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Puttin’ on the Nips

My first plan for this post was to show pics of my post-surgery breasts. Then I decided not to post pics since many people are offended by breasts. Then I decided I would include pictures and preface them with something to the effect of: “If one were to get nipple reconstruction, one would look like this…” However, I am just going to show you pics of my reconstructed breasts because I am a female mammal and this is what this group of humans looks like underneath their clothes. I have legs, arms, fingers, toes, a liver, a uterus, a spleen. I have lots of parts, and here are two of those parts:

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FRANKEN-NIP!

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It looks like Playdoh, but it’s yellow gauze.

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The only bruising I had was on my sides. I assume that’s because that’s where the blood pooled during the liposuction?

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The little bandages on my belly are where the needle went in for liposuction. Dr. Maclin then took this fat and transferred it around my implants to give the breasts a natural fullness.

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pre-nip breasts (that’s my port scar at the top of my chest); notice how at the top of the breasts there is a slightly concave area. Dr. Maclin filled this in with fat from my belly.

#carrie #stephenking #dirtypillows

I went in a few days before surgery to meet with my plastic surgeon, Dr. Maclin, and using a sheet of paper, he modeled the process of constructing a nipple from skin. He said he would basically be doing origami with my flesh. Here’s Big Mac with the paper nipple:


Even though the recovery was fairly painless, this was the longest surgery I’ve had in the breast reconstruction process. It was basically a five hour-long arts and crafts session for Dr. Maclin. Who needs Hobby Lobby when you’ve got the O.R.? Instead of glitter and Mod Podge, Mac* used my zaftig, sedated body to put his artistic and medical skills to use. During the five hour surgery, Mac took fat from my belly using liposuction, then transferred it around my implants to give my breasts as natural a look as possible. Then, he removed skin from my lower abdomen and created nipples from it (much like one creates something 3D through origami). He attached the skin using a “baseball stitch” in order to simulate the natural unevenness of an areola’s border. Lastly, he injected my port scar with some steroids to smooth it out since it was hypertrophic. (*Please note that I have the utmost respect for doctors, and in person I always address my plastic surgeon as Dr. Maclin, but to my friends and family, he’s often referred to as Maclin, Mac, Big Mac, or Dr. Titties.)

Mac is always cracking me up. When I was in the pre-op room, I asked him about the possibility of having pubes sprout from my nipples since he would be taking skin from my lower abdomen, and he said if this happened, then I could just get laser hair removal. (How funny/terrible will it be if I start having pubes sprout from my nips?) He then shared a brief anecdote about how when he was a resident, he had a “Grey’s Anatomy” experience with another resident, and she had hairy nipples, and she was embarrassed by them in their heat-of-the-moment tryst, and he was all, “I don’t even care right now!” I think that Mac is good at reading people and knowing what he can and can’t say around them/what they’ll respond to, and he knew I’d appreciate that story. Luckily, it looks like the area where he removed my skin is high enough on the abdomen that I won’t have to worry about any short and curlys growing anywhere outside of the mons pubis.

Another thing I appreciate about Mac is his use of metaphors. He has a metaphor for everything. A week after surgery I asked him if I could go swimming (I know, dumb question), and he said, “Oh heck no! You’re essentially a cheap watch: water-resistant but not waterproof.” I also appreciate how he makes me feel cared for as a person and not just as a patient. He left a note on my abdomen bandage after surgery: “461 days down, 6 to go!” During my overnight stay at the hospital, none of the nurses could read the note, but when I got home, I could read it when I stood in front of the mirror.


Let me preface this by saying that I do not condone the recreational use of opiates, but I totally get why people do heroin. The first time I received anesthesia was when I had my wisdom teeth removed, and I was so worried. Would I feel myself slip into unconsciousness? What if I woke up and felt the pain but lacked the ability to open my eyes or speak? However, I’ve come to enjoy the experience of being sedated. The anesthesiologist gives you a little something to make you feel reeeeeeaaalllll chiiiiilllll and then the next thing you know it’s six hours later and you’re in a room where you can discern some voices, but that’s about it, and then eventually you’re fully conscious and in another room with balloons and family members. It’s a real trip, man.


What I most enjoy about overnight stays in the hospital is having a catheter. I’m one of those people who has to pee about 10 times a night, so a catheter is awesome.


Before my mom left my hospital room for the night, we somehow got on the subject of Dr. Pimple Popper. Have you seen her videos? Dude. I woke up in the middle of the night in the hospital room, and for about two glorious hours I watched blackhead and lipoma extractions. I don’t do drugs, but if I did, I would probably just lie around and watch Dr. Pimple Popper all day. While I was confined to my house post-surgery I started paying attention to and posting Instagram stories, and I love hate-watching Busy Phillips’ stories. Do you follow her on IG? I can’t stand her IG stories, but I can’t stop watching them.


So June gave me not only new nips, but a new whip. After 11 years with her, my 2006 Mazda 3 threw in the towel. She had a variety of issues, and it was for her own good that I put her down, but I’ll always remember her fondly. She took me to and from California as well as up and down the Golden State coast. Many times she held me in her automobosom as I laughed, cried, screamed, and fretted. She was a good car, and she gave me six years without a car payment. In the end, I got $700 for her. I was proud of myself for buying a car without being accompanied by someone with a Y chromosome. When I bought my last car 11 years ago, I brought my dad with me. I don’t think I ever contemplated going without him. However, there was no way that as a 37-year old woman I was going to feel pressured into bringing a man with me to buy something. As I drove to the dealership, I ran through potential difficult scenarios in my head, and I’d practice my lines: “Look, asshole, just because I have a vagina and a pleasant disposition doesn’t mean I don’t know when I’m being taken advantage of!” but all of that premature anger was for naught. The salesman was great, and I got a great deal, and I love having a car with Bluetooth.


I have some serious Franken-nips right now. They’re dry, so they look crusty. I need to ask Mac if I’m allowed to put lotion on them. The stitches poke through my shirt if I’m not wearing a bra. I have no sensation in my new nips (and I never will), and they’re fairly erect right now, but they will subside within the next couple of weeks. In December I will get them tattooed, and that will complete the breast reconstruction process.


I’ve had a lot of successful surgeries in the past year and a half, and I’ve taken a lot of life-saving medicines, but what I’d really like is a pill that transforms my pre-frontal cortex, giving me the power to control my eating and spending habits. With this pill, I would maintain a BMI of 20 and save 20% of my income. But for now, I’ll continue to go out for dinner and drinks on the reg.

 

 

 

 

Death/Dry-Humping/ Depression/Dating

I can typically assess the state of my mental health by how I react to hearing New Order. I was just listening to The Clash station on Pandora and “Age of Consent” started playing, so I started crying. I can’t put my finger on what it is about that band, but it triggers something in me.

I have been in such a funk lately, and there are numerous contributing factors. Firstly, I must admit something: I sort of miss having cancer. I know, I know, that sounds crazy, but here’s why: it gave me purpose. I felt really alive when I had cancer. I also felt lethargic and ill, but I knew I was going to beat the disease; I lived in warrior mode. I woke up every day and was all, “Once more unto the breach! You goin’ down, you hormone-fed, malignant, walnut-shaped, parasitic, tumorous bitch!” or something like that. Actually, that statement reveals a lot of anger, and at the time, I was not angry; I was optimistic. Now I’m angry. In the months following chemo and surgery I was so eager to reclaim my life; I was travelling; I was planning my dance party/fundraiser. Now I’m feeling run down.

The funk started about a month and a half ago when my dear friend Brian passed away after having just been diagnosed with a rare blood disorder. His wife Anne is my lifelong best friend. They have three beautiful children. It was a devastating situation. Being at the visitation and funeral reminded me just how much of a role Brian played in my life. Almost every romantic relationship I’ve ever had was either directly or indirectly facilitated through Brian. In the presence of death, so much of my life passed before my eyes, and this spurred a low-grade existential crisis that had me evaluating my life choices and contemplating my future. But this mindset is nothing new for me. I am a chemically imbalanced seeker of meaning who is doomed to perpetual restlessness. That is my tragic flaw, and it drives me to live a life full of adventure and excitement, while at the same time never feeling like I’ve achieved enough and always wondering if I’m headed in the right direction. When I was 18 (in 1998), right after I graduated from high school, I wrote myself a letter. I sealed it and wrote “Do not open until 2008. Beware: you were in a weird mood.” I was in the same mindset as I am now. I asked myself a bunch of questions to the effect of “Are you still anxious all the time? Do you still doubt yourself all the time even though you know you’re capable of great things?” It’s funny that it’s been almost 10 years since opening the letter. Yes, Jenny from 20 years ago, you are still anxious, but not all of the time. Yes, you still doubt yourself even though you’re capable of great things (and you have done some great things).

I was born chemically imbalanced. My extended family can’t get together without someone reminiscing about my choleric infancy and childhood. My tantrums were epic. Right before sixth grade we moved from Denver to St. Louis, and this event coincided with the onset of adolescence. I went from a skinny, pretty, happy child to a swollen, pimply, moody tween. Even at 12 I was thinking, “Woe is me; my good years are behind me. I used to really be someone, but alas, that time is gone.” The good thing is that even though inner Jenny is quite emo, the outer Jenny is not. The best example of this paradox is that in middle school, or as I like to call it, “Dante’s inner-most ring of hell,” I was voted “Most Positive.” Shit, ya’ll, I should have been given an Oscar for my 8th grade performance. But I think this represents how my chemical imbalance manifested itself as I got older. The outward rage I displayed as a three year old dragging my head across the floor while screaming was turned inward in the form of depression. It was never debilitating; I was just occasionally hit by pangs of melancholia that I kept to myself. The only time I was ever clinically depressed (I was never officially diagnosed) was during my senior year of high school. The depression came out of no where. It actually started the summer before 12th grade. I found myself crying deep sobs of sadness for no apparent reason. There was no external catalyst for this behavior. It was as if on some night in July of 1997 my neurotransmitters got together and said, “Ya know what? We should fuck dis bitch up.” And they did. At the beginning of the school year I was babysitting my neighbor every afternoon, and I remember being in their house and feeling like the walls were going to cave in on me. I would come home and cry in my room. I would wake up in the middle of the night and feel panicked and nauseated. I channeled this anxiety into thinking I was pregnant (even though I had never had sex).

Yep, I was cray cray. Let me give you some background on this. In about 1994 or 1995 there was a Q and A in YM magazine (ladies, remember that magazine?) where some girl wrote, “Help! I’m pregnant, but I’ve never had sex!” That shit fucked. me. up. Ya see, my high school boyfriend (I really wish I could have met him when we were about 30) and I used to dry hump the shit out of each other in his parents’ basement. We were such good kids; we were afraid to drink or have sex because that was bad, and we were at our naughtiest when we progressed to dry-humping in our underwear. Anywho, during that time of depression and anxiety I wasn’t having my period (which now of course I know was because of the emotional strife I was experiencing), and this only exacerbated and prolonged the situation because then I thought I was pregnant (from dry-humping). It got so bad that I even told my mom that I thought I was pregnant, but I assured her that I was a virgin. I think her reaction was something to the effect of, “Riiiiiiight,” but she went to a distant drugstore and bought a pregnancy test, and sure enough—> negatory. At some point in the spring of senior year, my neurotransmitters corrected themselves, and life improved.

I am a happy person, and I like my life, but I am prone to bouts of anxiety and depression that I keep fairly well controlled and hidden (for the most part). When I was 23, I decided to do something about my inner demons, and for the past 14 years I’ve taken a light dosage of Lexapro that has staved off depression (and some of my anxiety). Unfortunately, the medication I take to ward off a recurrence of breast cancer manipulates my hormones, and the main side effects, according to my oncologist, are hot flashes, anxiety, and mood swings. I’m thinking that this has something to do with my current mental state. However, just spewing this personal information at the world has lifted my mood, so thank you for being a part of my catharsis. I need to look into strategies for fending off existential dread. I’m too easily affected by my surroundings. I need to stop taking everything so personally. I need to not let an email from an angry student calling me a “fucking bitch” make me question my professional life choices. I need to not let the rampant apathy of my eleventh-graders suck the life from my soul when I have plenty of students who love learning and appreciate me. Sometimes I think I’ve chosen the wrong career, but then I face the truth that it’s not the job, it’s me. There is work to be done.

During The Great Funk of 2017, I decided that perhaps finding that special someone would help me find some stability. I don’t usually find myself thinking, “Oh, I wish I had a boyfriend” (although I recently did when I had a pimple on my shoulder blade because I couldn’t reach it). I have bad reasons for wanting a mate. If I was being honest,
this is what I would advertise on the dating apps/sites: “ISO of a smart, funny, handsome, successful man to pop my back pimples (a rarity, but it happens), cook for me, rub my feet, and help me work through my periodic existential dread.” Therefore, I prolly should’t date, right? I went on four unsuccessful Tinder dates which quelled my desire to find someone, and I’m back to being content with my spinsterhood. Week of spring break, Tuesday: had coffee in the morning with a hot, swarthy man; I could tell he thought I was nice, but I could also tell he wasn’t into me. When we left, I could tell he felt obligated to say, “Maybe we could do this again,” but I knew he didn’t mean it. That night I went on a dinner date. I liked this dude’s sense of humor. He was smart and funny, and we laughed a lot. We walked down to the pinball/skeeball arcade and had a blast. I thought we totally hit it off. His birthday was a few days later, so I texted him “Happy birthday!” but there was no response. On Saturday I went on a date with a dude who was 10 years older than me, and his old ass had the temerity to have a disappointed look on his face the moment I walked into the bar. He messaged me on Tinder the next morning and said, “Thanks for coming out. I don’t think we’re a match, but good luck to you,” and I was really impressed by that gesture. I was going to remove the Tinder app from my phone when I got a message from a guy who joked about needing a baby in the next year in order to get his inheritance. I thought this was funny and promising, and when he suggested that we have brunch at my favorite bloody mary spot, I was pretty stoked. However, it turned out that he was not funny and that I was approximately three inches taller and 40 pounds heavier than him. Also, he ordered a virgin drink.  At that point, I was all, “Well, that’s enough Tindering for me.”

And so here I am. I broke up with a guy right before I moved to California, and I’ve always missed him. He clearly hates me (and understandably so since I broke up with him, moved to California, and got engaged to someone else six months later). Every time I try to reconnect with him (which is not often), he blows me off. I got drunk at a restaurant this past summer, and there was an Ernest Trova painting hanging on the wall. My ex was Trova’s protege, and so I thought of him and messaged him on Facebook (even though we’re not friends). I told him that I was looking at a Trova painting and thinking of him, and I asked how he was doing. His response was something to the effect of, “Is it the yellow painting?” and I responded, “yep.” That was it. I had to laugh at how pathetic that exchange was. He probably laughed too. I loved his weird sense of humor. After our second date he dropped me off at my place, and it was obvious he wanted to come in, so I told him, “OK, you can come in, just don’t date rape me,” and he thought that was hysterical, and I loved how he thought that was hysterical. One time we wrote lyrics for a comedic musical about the Civil War. I think it’ll be hard to find a man like that again.

Just writing this has lifted my mood. It’s time to start being proactive in overcoming my woes. I know I’ll look back on this funky month and laugh. I think that’s why I’m so drawn to dark humor. Life is tragic, but it’s also pretty great. And funny.

Haikus for Low Points

Something’s missing in my life. Maybe it’s that special someone? Last week I felt compelled to try the ol’ dating apps again.

Here are some of the gems I’ve come across while swiping left; I recognize that it’s insensitive to write facetious comments about men I’ve never met and who could potentially be wonderful people, but I had cancer*, so I feel like karma paid it forward and I’m only evening the score with this cruel, creative effort. *I will most likely use this as an excuse for the rest of my life. “Sorry, I can’t attend that meeting; I used to have cancer.” “Oh, you want me to help you move? Sorry, can’t help. Used to have cancer.” “Hey, Mom, remember when I used to have cancer…Can you bring me some ice cream?”

 

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I appreciate

Your unabashed presence,

But we will not date.

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BTK Killer?

I thought you were in prison.

I am scared of you.

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‘Douche’ is what I see.

Your nipples are really small.

Bathroom selfies–>STOP.screenshot_2017-03-06-18-33-30-1.png

I assume that you

Are not the one in the chair.

It’s fun with the fam.

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“Bloody cat man here:

Just weirding my way through life.”

I don’t understand.

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Is that a wet suit?

I want this to be a joke.

I don’t think it is.

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Bad hombre/ombre:

Statement necklace with turtle:

Or it’s a tortoise?

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Man in plaid with dog:

That’s an interesting angle

For a profile pic.


There are actually plenty of attractive and seemingly normal men on these apps, and tomorrow I’m having coffee with one of them. Can’t help but think about this episode from Inside Amy Schumer:

 

CREATE

2016 was less than sweet, right? We lost Prince, David Bowie, Leonard Cohen, George Michael. I lost my breasts and my fertility. We gained the host of Celebrity Apprentice as president. I’m going to enjoy this last week of the year, celebrate its ending, and fully embrace 2017.

A few years back my friend Amy introduced me to a tradition of starting the new year with, not a resolution, but a word to guide my choices for the next trip around the sun. This year I choose CREATE. I like this tradition because I thrive in nebulous, creative conditions; specific tasks tend to wear me down. In 2017, I plan to:

  • Create a body that’s best prepared to combat illness and aging (I think dance classes are the only way for me to get excited about physical activity; I just got the STLCC Continuing Education catalog, which I always get excited about (ooooh: a stained glass window-making class? beginning Arabic? Bellefontaine’s Mausoleums? yaaaaas!)–and the tap dancing and ballet 101 classes sound fun.
  • Create at least one meal from The Joy of Cooking every week in the month of January (in hopes that I find the joy of cooking; so far, I only know the joy of picking out pre-made meals at Trader Joe’s).
  • Create The Breast Dance Party Ever on Feb. 17 to bring in beaucoup bucks for Gateway to Hope. You should come because A) It’s going to be a HELLUVA party and B) it’s for a good cause. You can buy your tickets/donate here: https://www.eventbrite.com/e/the-breast-dance-party-ever-tickets-28306152464
  • Create fond memories with friends; friends are awesome. I don’t know of anything more wonderful than belly-laughing with friends.
  • Create the life that best soothes my soul and fuels my fire. This is SO NOT a S.M.A.R.T. goal, but I need to let my intuition guide me. I often ignore it, but I need to abide by it. (Do non-teacher people have to write S.M.A.R.T. goals? (specific-measurable-achievable-realistic-timely) I think they’re dumb.
  • Create a mindset that allows me to not procrastinate grading. I hate with a passion grading stacks of essays, and I must figure out a way to power through this dreaded task.
  • Create a book. I want to write a book. I need to start my frigging book.
  • Create a financial plan that allows me to enjoy life and keep my credit card balance at a minimum (no more drinking champagne cocktails at The Plaza when I have 84 cents in my checking account).
  • Create nipples. Actually, I’ll let Dr. Maclin do that.

What will your word be?

I Have No Nipples: A Sonnet

I have no nipples, just two light pink scars

That run across the length of my new breasts.

Maybe I should get tattoos of pink stars?

On silicon clouds those novas would rest.

If my whole body is the Milky Way,

That barred, spiral galaxy high above,

Then my new celestial nips, I say,

Will shine like beacons of heavenly love.

Named because it resembles creamy milk,

A substance my barren body won’t make,

The Via Lactea seems smooth like silk.

My heart is the sun, and sometimes it aches.

I’m just one of billions of galaxies.

Floating in space seeking my destiny.